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By Priscilla Greear
ATLANTA AIDSNo Time to Spare is the title
of a report recently issued to President Bill Clinton by Lynne Cooper and
others on a presidential advisory council. It is the message Cooper gives about
the global spread of HIV/AIDS, the worlds worst epidemic since the
bubonic plague of 1348.
Cooper, who grew up in Atlanta, currently runs Doorways, an
interfaith AIDS housing program in St. Louis. She also traveled this year to
Africa, the heart of the AIDS crisis, and to Atlanta to attend HIV/AIDS
conferences. At the U.S. Conference on AIDS held Oct. 1-4 in Atlanta, Cooper
carried with her, from the international conference in July, a sharper sense of
the widening scope of the virus wrath in Africa and globally and the need
for increased U.S. intervention.
The national conference sponsored by the National Minority AIDS
Council attracted over 3,300 community-based workers, people with HIV,
physicians, social and health department workers and others to learn, share and
network. Cooper, a former Sister of St. Joseph who graduated from St. John the
Evangelist School in Hapeville and St. Josephs High School in Atlanta,
led a daylong institute on housing. She became Doorways president in 1996 after
serving as executive director since 1989 and is on the board of the National
AIDS Housing Coalition.
The event focused on HIV/AIDS in the United States. One concern
was how to reduce the rate of the spread of HIV/AIDS among Latinos and
African-Americans, who are increasingly disproportionately affected. Topics
ranged from the innovative and successful role of black churches in helping to
address HIV/AIDS issues to the lack of HIV/AIDS information in Spanish.
While people treated with new drug therapies in the United States
are living longer, approximately 40,000 new HIV infections occur each year, a
rate unchanged since 1992, according to the Centers for Disease Control and
Prevention. In 1999 blacks comprised 54 percent of new infections and Hispanics
19 percent. This occurred although blacks make up only 13 percent and Hispanics
12 percent of the population of the United States.
Cooper said that in St. Louis African-Americans, who make up 20
percent of the citys population, represent 65 percent of new infections.
The NMAC sponsorship gave her hope.
They have been leaders in mobilizing and in empowering the
minority communities to shed some of the denial and deal with HIV/AIDS,
she said. One of the big challenges is to get minority
leaderspeople with resourcesand the church community all headed in
the same direction of care for people with HIV and AIDS, particularly to
empower minority leaders to work within their own communities to prevent HIV
and to care for people with HIV.
National initiatives include the Congressional Black
Caucus/Minority HIV/AIDS Initiative, which allocates money through the CDC to
help minority agencies address AIDS issues. The CDC, which provides over $400
million to help communities build prevention programs, has increased HIV/AIDS
prevention funding from 1988 to 1999 from $11 million to $140 million for
African-Americans, and for Latinos from $7 million to $59 million.
AIDS seems to be associated with poverty. Poor people have a
greater likelihood of not receiving the prevention message and of having poor
health care in general, Cooper said. Theres a tremendous
amount of denial in all of our communities, particularly the minority
communities. Its hard enough to deal with discrimination. Theres a
lot of denial of HIV and AIDS because it only adds to the burden the individual
and community face.
People who are seeking treatment are living longer through
expensive new drug therapies. Some drugs cost as much as $15,000 a year.
That makes it an even greater challenge. A lot of people dont have access
to health care in general. AIDS only compounds the problem that we already deal
with as a nation, she said. Its a basic question as to
whether you believe health care is a basic right.
Cooper, who holds a doctorate in ministry from Eden Seminary in
St. Louis, spoke at the conference on developing housing projects for people
with HIV/AIDS. Many lose their jobs and health insurance, cant afford
housing or are discriminated against in the housing market, she said. Housing
and other essentials like food and clean water are necessary for people with
HIV/AIDS not only to survive, she noted, but also to follow strict, long-term
regimens required for drug therapies. Helping people manage their illness in
decent housing also reduces emergency room and hospital visits and thus cuts
costs and benefits the whole community.
Anybody who doesnt have basic necessities ... is
unable to comply with the drug regimen that is required to keep (the person)
alive and healthy.
On the global front, an inability for Africans with HIV to take
new medications properly is an enormous barrier in that continents AIDS
crisis. It was also one issue discussed among hundreds of presentations at the
XIII annual international conference on HIV/AIDS in Durban, South Africa,
Breaking the Silence. Cooper joined over 12,400 others July 9-14 to
discuss a variety of concerns including medical care, research, prevention and
international concern. While only 10 percent of the worlds population
lives south of the Sahara in Africa, that region accounts for over two-thirds
of the worlds over 34 million cases of HIV/AIDS. It is estimated that
over 12 million children have been orphaned there as parents died from the
illness.
Having gone to get a better sense of the virus global
spread, Cooper, 49, came back overwhelmed by how far reaching the poverty
was, how devastating it had been to the population already and how ill-prepared
many of the primitive countries were to deal with it.
But she returned undaunted in her determination to fight it.
Following the conferences, in October Coopers work took her to
Washington, D.C., where since 1998 she has served with about 34 others on the
Presidential Advisory Council on HIV/AIDS. It was established in 1995 to advise
and educate others on effective prevention and to promote research and needed
services. They then presented a report to President Clinton recommending
actions for his final months in office. Their task now is holding our
breath to see who becomes the next president and what direction
hell take. Cooper added that Clinton has been very attentive to the
issue and under his administration funding for prevention, research, care
and overseas aid has increased.
The report recommends supporting the highest possible funding for
prevention, treatment, housing, research, substance abuse treatment,
international programs and the Congressional Black Caucus initiative. Other
advice includes providing significant debt relief to nations hardest hit, as
some countries spend more on that than health care. It called on the president
to urge religious leaders to discuss the epidemic openly and particularly to
fight sexism, homophobia and racism, which contribute to high-risk behavior.
It was a great honor, Cooper said of serving on the
council. I had the opportunity ... to meet some of the most important
people in the nation, in the world and to learn from them about our work and
how to do a better job.
Back in St. Louis, Cooper is busy opening new doorways to
affordable housing and providing a better life for the infected, plus speaking
on her Africa trip. Doorways assists over 320 persons with rent, mortgage and
utility bills, operates four apartment buildings that house 100 people and
assists another 36 persons in a residential care facility for persons with
AIDS.
The Archdiocese of St. Louis is one of its biggest financial
supporters, a tradition rooted in the leadership of the late Archbishop John
May who supported Doorways establishment and told Catholics it was their
responsibility to care for those who are sick when a lot of (church)
people didnt want to do anything with AIDS.
When people wanted to discriminate or say AIDS is Gods
punishment, he was somebody who would stand up and say the only appropriate
faith response is care, not judgment, she said.
For Cooper, AIDS ministry is right on target with Catholic social
justice teaching as it serves those often afflicted not only by the virus but
by homophobia, poverty and discrimination. And there are probably people
secretly living with AIDS in every community. Its clearly an effort
to care for the poorest of the poor, she said. Its really
consistent with church social justice teachings and the church being concerned
for the poorand especially right now when racial minorities and women and
youth are those who are being disproportionately affected (as) these are people
who already share a special burden of poverty and discrimination.
She recommended churches interested in AIDS ministry invite
speakers from various AIDS organizations to determine what route best fits the
parish personality.
Cooper, who returns to Atlanta to visit four siblings here, is
privileged in St. Louis to both build decent housing and Gods kingdom.
I probably see more of God and spirituality on a day-to-day
basis at work than I would in a more formal religious setting, she said.
Its sad, and there are really bad things that happen, but
theres an incredible amount of good. People who have HIV sometimes grow
because of it ... Theres just a great return on the investing of time and
energy.
And as the Doorways president continues her work shes
staying in touch with and supporting a well-known AIDS activist in Zambia named
Mwelwa. If you look at only the big picture you wind up being paralyzed
and do nothing with this situation. If I send him $100 that goes 20 times
farther than it would in the U.S. He could do a whole lot of good with very
minimal resources. |