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By Suzanne Haugh, Staff Writer
MARIETTAFelicia just celebrated her 10th birthday. But
19 is my favorite number, she confided over the phone one rainy evening.
It makes me think of 19 puppies.
Earlier in the brief conversation she shared that one thing her
6-year-old sister didnt like was thunder, which was why the baby of the
family was having trouble falling asleep.
For their mother, Brenda, now 43, sleep had escaped her one
January evening in 1998, as she lay in a Grady Hospital bed shocked by news
that she was HIV positive. In the darkness of that night it took the Lord and
love for her three daughters to pull her through to morning.
Not soon after that night she turned to the surrounding community
for help in piecing together her life for the sake of her three daughters. One
place she found help was where she least expected it, a Catholic church.
Before I thought the Catholic Church was very private, more
for the upper crust, and that they only helped people who were Catholic,
said Brenda, who attends a Cobb County AME church.
But Brenda has experienced the generosity of parishioners at St.
Anns Church in Marietta through the St. Anns AIDS ministry. Whether
it is giving out grocery vouchers for a daughters birthday cake or
providing rides to places one may need to go, St. Anns AIDS ministry has
orchestrated the effort to keep intact the lives of many people, like Brenda,
who are HIV positive.
People are warm and open, Brenda said of the
ministrys volunteers. They dont ever make me feel like I have
a disease.
Brenda, who is African-American, had moved to Marietta, while
going through a divorce, to be near a home where she provided child care and
domestic help to a family.
I was working, doing my regular everyday routinego to
work, come home, feed the kids. I started getting chest pains, which I thought
might be gas. It bothered me a lot.
The pain continued off and on until one Friday when she finally
made arrangements for the girls to spend Saturday with their grandmother while
she went into the emergency room.
I got myself together and went to Grady, she said.
The rest of the day they did all kinds of tests and they couldnt
diagnose anything. They couldnt find why my chest was so bad.
Brenda remembered times early on when she would get mouth sores,
called thrush, sometimes associated with someone who is HIV positive.
I didnt know any symptoms of HIV; it never crossed my
mind. I knew the disease was out there.
She recalled going to a drug store one time and asking the
pharmacist what he would recommend for her mouth sores and what caused them.
He wouldnt tell me, she remembered, and he
said that I needed to see a doctor. I thought he was being rude, nasty.
Goodness, I had never seen a pharmacist never tell someone what they wanted to
know. I thought that was strange.
So she remained in the hospital as they ran test after test until
doctors decided to admit her, finally asking for her permission to administer
an HIV/AIDS test. Sure, said Brenda, who later was moved into her
own room.
They still were not telling me anything, she said.
It was so weird. It started to make me angry. Once the shift changed, I
started questioning the nurse and she told me the doctor would be in to talk to
me.
The doctor came and asked her if she knew what HIV was and then
told her that her test had come back positive.
Oh no, you must have the wrong person, Brenda
responded. I was really upset. They sent a priest in and he talked with
me. But I was still thinking, I cant believe its me ... It
couldnt be me. When did this happen?
Brenda refused to take any calls from her concerned family, even
from her 22-year-old daughter calling from Macon. Doctors prescribed something
to calm her nerves and help her sleep as Brenda agonized over the news.
I just wanted to die, she remembered thinking. I
thought I would die and my girls would be left to raise themselves ... I felt
that life was over.
She knew there wasnt a cure and her despair finally gave in
to a desire for sleep.
But the Lord woke me and let me know that it wasnt
that bad. I had three beautiful daughters. I decided to let it go ... The Lord
let me know that he wouldnt let something happen and that he was not
ready for me. I had to get myself together to take care of my girls.
The next morning Brenda answered a call from the woman for whom
she worked. Brenda told her the news and the two prayed over the phone. She
later talked to her ex-husband who then brought the girls to the hospital. Once
Brenda let those close to her back into her life, she found needed support.
Everybody was there for me, she said. I felt
they loved me unconditionally, that they knew I was still Brenda.
Brendas closest friend told her older daughter, who was hurt
that her mother hadnt confided in her but reinforced her feelings that
she didnt care how I got it, but was concerned that I would die.
I need you to be here for me, she told her mother.
With medication and bed rest, Brenda regained her strength and
left the hospital. Now she had to redirect her life and sought the help of
others to do so.
I was trying to figure out the way to go, she said.
Using a list of AIDS-related community groups given to her by a Cobb County
social worker, she spent a day making phone calls to organizations fairly close
to her home. She called St. Anns AIDS hotline and left her name and phone
number, not expecting much from a ministry within the Catholic Church. Within a
day, Sharon Collins, coordinator for the St. Anns AIDS ministry, returned
her call.
I told her that I was looking for beds for my little
girls, said Brenda, who was still reeling from her recent separation from
her husband.
Collins then said that she would place an announcement in the
church bulletin and gave Brenda the phone number of ministry member Jeannie
Feichtner, who was in charge of handling the basic needs, such as food, of
those they help. The next evening, Brenda received a phone call from Feichtner,
whom she described as a sweetheart. The ministry wanted to let her
grocery shop at the church pantry. When Brenda told her that she had no car,
arrangements were made to bring the food to her.
She and Sharon are most inspiring in my life, Brenda
said. I forever thought that the large Catholic Church was too
sophisticated and that it only helped Catholics, she said. I never
knew how much they cared; I didnt know.
Feichtner would visit or call Brenda on and off to ask how she was
feeling. Not long after her request, a full-sized mattress and frame found
their way into Brendas modest apartment.
Theyve done so many things and theyre always
asking if there is anything else they can do, she said.
As Brenda waited for her first Social Security check to come, St.
Anns AIDS ministry helped to cover some of her rent and a light bill.
They were just so great ... I could go on and on. Finally I
got to where I didnt need anything and another girl I met (who needed
help), through me, got in touch with St. Anns and they helped her with
furniture, clothes, food.
While Brenda has told some friends and relatives about contracting
HIV/AIDS, others close to her, mostly older family members out of state, still
dont know. Theyre illiterate about AIDS and do not have a lot
of knowledge about it. One of my nephews has it and I can see how they treat
him differently ... Once Id tell them they would be saying, I
cant believe it. Who did it?
Except for a cold she let go too long, Brenda has remained healthy
since her hospital stay two years ago. She has gone from the walking
dead to the miracle patient, dubbed so by her doctor with the
Cobb County Health Department.
Brenda visits her doctor about every two months for a check-up and
to replenish her medication. Theres a lot to name them all,
she said. Her doctor writes down a schedule for her that she tries to follow.
She wonders, however, if she might not be taking one of her pills correctly and
searches out her schedule, something she meant to do earlier. She will go in
next week for lab work that will test how well her body is responding.
Her current treatment includes taking 13 pills, about half in the
morning and the remainder at night. Brenda started a new treatment in September
since her T-cell count, used as an indication of the strength of ones
immune system, had dropped even though she felt fine. My body plays
tricks on me, she said. She now takes fewer pills than when she first
started treatment, but stronger doses.
She has made adjustments to her life to account for living with
the HIV/AIDS virus. My eating habits have changed a lot, she said.
I cant eat any raw foods at all, like sunny-side-up eggs, which I
used to love.
While her oldest daughter knows about her having HIV/AIDS, Brenda
has chosen to wait to tell her youngest daughters, who continue to test
negative for the virus at annual check-ups. Felicia is real emotional.
Her teachers are always talking about how loving she is. If she thought I was
living with a disease that could kill me, it would really affect her. She would
always be crying.
Brenda has envisioned telling her daughters some day. I
would be able to tell Felicia if I knew I was definitely sick (and close to
death) ... but Id like to wait until she gets older and has learned more
about it.
She has felt a calling to educate others by sharing her story.
Theres so much information all over TV, but its not really
talked about in schools or churches. I want to wake up people and let them know
how they can get it. Theres still so much information, still people who
dont care.
She commented on the population change of those she now sees as
she sits in the clinics waiting room. Half of the patients (the
doctor) is getting are teens, she said. When I started to go in,
there were no teens there.
People need not be ashamed about having HIV/AIDS, Brenda said and
added, If it happens, it happens; you have to deal with it. But a lot of
people arent open to it.
If she didnt have her two youngest daughters to raise,
Brenda said she would have accepted an offer by one organization to tell her
story before different groups. But the kids daily needs come first, such
as her middle childs adjustment in a new school program.
Shes tried it and has done really well, said the
mother now wrapped up in her girls lives. Her youngest daughter she
jokingly described as the boy I never wanted.
Shes full of energy and loves all kinds of boy stuff
... She can be rough and most of her friends are boys.
Both of her daughters enjoy working with computers, which they use
at school. When we go to the library the girls go crazy. I can never get
them out of the library.
Brendas current project is to find a way to replace the old
broken computer handed down to them. I know I ask for a lot, she
said, but I think, you never know. Its Christmastime and maybe
someone will want a brand new one to update.
This year the St. Anns AIDS ministry will sponsor Brenda and
her family at Christmas. And if history does repeat itself, there will be
a lot of love from St. Anns. |