| By Paula Day
The modern patient undergoing a bone marrow transplant truly understands the
biblical image of walking in the valley of death.
Doctors bring the patient to death's door in a calculated risk that the
patient will not only survive but be healed. But the path into the valley and
back is torturous and fearful.
"My life was saved by the prayer of the Church," Father Ken Bayer,
MSFS, says simply of his experience. The Norcross pastor underwent chemotherapy
and a bone marrow transplant in September at Emory University Hospital and is
now regaining his strength in the rectory of St. Patrick's parish.
Father Bayer says he was in a state of shock when he was told June 9 he had
chronic myelocytic leukemia. The 43-year-old priest got the news after a
routine check-up in preparation for a planned trip to Thailand. He seemed in
the best of health, playing and winning at racquetball two or three times a
week.
"Everyone's first question is 'How long do I have to live?'" the
priest says. "There's no denying the diagnosis. But defying the cancer,
yes!" He wanted to know if anyone with his set of circumstances had not
merely survived, but gone on to be healed. When the answer was "yes,"
he decided to fight the disease. He was in the early stages of a cancer that if
left untreated would be fatal.
"For the patient odds mean nothing," Father Bayer pointed
out. "There's no such thing as living 65 percent. You either live or you
don't live. And you won't live one second longer or one second shorter than God
wants you to."
The treatment amounts to killing the patient's diseased blood and replacing
it with a healthy supply obtained by transplanting bone marrow from another
person. The transplanted marrow manufactures completely new blood. In Father
Bayer's case, his blood type is no longer A negative, but B positive, the blood
type of the donor, his sister, Christine Bayer.
There were monumental hurdles to overcome. Finding a donor was just the
first. Father Bayer was fortunate because he has nine siblings and one sister
was found to be a perfect match.
For Ms. Bayer there was never any question of not agreeing. "I would do
it again," she said in a telephone interview. "It was a wonderful
experience."
A St. Louis resident, she came to Atlanta for the surgery and said her only
concern was that if the transplant did not succeed, she would be here alone
with her dying brother. "But I was also thrilled. It was new and different
and exciting." She was frightened, too. She had been told the process
would be "excruciating" but "it was nothing. I gave birth to a
43-year-old man. Rarely does a person get the chance to live up to one's
ideals."
After finding a suitable donor the next hurdle was taking lethal doses of
chemicals to kill the cancerous cells.
Beginning September 7 Father Bayer received the anti-cancer drugs,
administered orally and directly into his bloodstream. The chemotherapy
treatment lasted eight days. Simultaneously he received medications to keep him
alive. Extreme weakness and nausea accompanied the chemotherapy.
"I understand better the whole idea of death and
resurrection," the priest said. "I'd go to sleep not knowing if I'd
be alive the next day."
He describes the experience with an image, saying it was as though he were
walking along a seashore and death extended a skeletal hand to him
"tempting me to take his hand. I never took his hand. I chose to live. The
temptation was not to choose life. It was a real conversion point."
Priests have an advantage, Father Bayer said, because they face the reality
of death more often than ordinary people. "We bury people, young children.
We visit people in the hospital. But even with that, we can deny death. We
drive home from the hospital, from the cemetery."
He describes the experience as "extremely spiritual. I found a lot of
personal growth. I'm letting go of nonsense -- of hurts, wounds, anger. Little
things don't bug me so much."
"To go from being a pastor, an educated man who was in control" to
total dependence on others and the ignominy of loss of bodily control required
"a letting go and saying okay to God," Father Bayer said.
On the eighth day, "day zero" as the Emory oncologists call it,
Father Bayer received what resembled a pint of blood through an injection in
his hip. The transplanted marrow would find its way into the core of his bones
and begin to replenish his blood. He continued to receive supplemental blood
products and other fluids, but he believes that was the first day of the rest
of his life. Although the doctors are cautious, he recalls one saying,
"You know, you're going to live to be an old priest."
There was a time when "my sister and I were fighting," the priest
joked. He developed a fever, the sign of host-donor complications. Father Bayer
credits Emory's expert care for staving off rejection. He still is highly
vulnerable to infection, particularly pneumonia, and children's diseases. He
wears a mask when going out of the rectory and does not offer Mass in public.
During his hospital stay Father Bayer continued to pray the Divine Office
and offer Mass for the people of his parish except when extreme weakness made
that impossible. Then his prayer became "simply recognizing my emptiness
before God."
It was the prayers of others that lifted his spirits. "People who knew
me and didn't know me, people who loaned me their faith." He was reminded
of Jesus' promise to those who leave all to follow Him that "they will
receive 100 times more brothers, sisters, fathers, mothers."
A friend in a rented red convertible took him home from the hospital.
"It was a bright, sunny October day. The trees were starting to change.
The red of that convertible seemed redder than any red I had ever seen. I was
sensitive to the privilege of seeing things along the road. Before I had just
been trying to get someplace."
The date was October 15, the anniversary of Archbishop Thomas Donnellan's
death. "To me, he was right there," Father Bayer said. "He had
ordained me. I had the highest regard for that man and I deeply loved
him." In Father Bayer's absence, Father John DeVore, MSFS, parochial vicar
at St. Patrick's, took care of parish affairs.
The priest is not out of the woods yet, although there is "growing
evidence we have a complete cure," he said. He returns to Emory twice a
week for blood tests and is considered at high risk of getting pneumonia until
60 days have elapsed. He must avoid crowds for six months and will have yearly
bone marrow tests the rest of his life.
Although Father Bayer will not be able to offer Mass in the church sanctuary
for six months, he says Mass daily in the rectory. He is beginning to meet with
parish leaders to discuss parish plans. He misses contact with his people and
stands at a distance outside on Sundays waving to them. Wearing a mask and
gloves, he tosses a ball to his dog Roxanne and makes guarded trips to the post
office. Although he speaks Spanish well enough to offer Mass in the language,
he hopes to study Spanish during his imposed convalescence to improve his
conversational ability.
At times he tugs at the restriction imposed by the six-month isolation.,
calling it the "black hole" into which his ministry has fallen and
asks God "why?"
"I cannot be at Mass with my people and I miss them. I tell
myself, that's what God wants from you right now. But for six months to drop
out of the parish..."
"God's answer is there is no black hole. Not for one second am I beyond
the presence of God," he asserts.
Father Bayer talks about his experience in liturgical terms, saying his time
now is like the days after the Resurrection when the apostles had to return to
their daily routine and reflect on everything that had happened. "What did
this experience mean for me?" he asks himself. "How will it affect
the rest of my life?"
"The first time I preach at the Easter Vigil," he
asserted, "I'll speak with a better understanding of the whole idea of
death and resurrection. I understand more now that one alone is God and He is
not us. All of life is a sheer gift. We cannot claim the next breath in our
lungs as our own."
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