| By Thea Jarvis
At three-and-a-half, Calvin Lee Swinger, Jr., is a curious young man. Round
and hearty, dressed in mini-baseball togs and sneakers, his big brown eyes and
investigative fingers probe whatever he can find at the Tender Healthcare
Center (THC).
Known as C.J. to friends at THC, Calvin Lee has a lot of catching up to do.
Born prematurely, he developed bronchopulmonary dysplasia, a scarring of the
lung tissue caused by the ventilator tube that helped him breathe during the
early, stressful months of his life.
C.J. came to THC last February because he refused to eat. Memories of the
pain and discomfort experienced when he first began ingesting food translated
to a dislike for eating altogether.
"Anything that touched the top of his mouth he threw up,"
explained Terry Austin, THC's director. The center, which received a $2,500
grant from the Campaign for Human Development this year, is a not-for-profit
pediatric day treatment facility providing nursing care, therapy and
developmental stimulation for medically fragile or technology-dependent
children aged six weeks through preschool.
It took six months to teach C.J. to eat, Ms. Austin said, admitting it was
"a test of wills" requiring staff to don raincoats and spread plastic
tablecloths when his meals were served.
"All the children would sit around and every time he ate something they
would clap," she said, explaining one step in the center's gentle behavior
modification that changed C.J.'s eating habits.
So good a job has THC's staff done that last month, C.J.'s doctor took one
look at his little patient's growing frame and advised it was time to "cut
back," Ms. Austin said.
Tender Healthcare Center, located on Dresden Drive in Atlanta, not far from
the Brookwood MARTA station, specializes in success stories like C.J. Opened in
July 1991 as a prototype for its parent company, Pediatric Services of America,
Inc., located in Norcross, THC offers an alternative to in-home and regular day
care services for special needs children.
Often, parents bring their children to THC because they have reached the end
of their financial and emotional rope.
"It I hadn't found this place, I have no idea what I would have
done," said Charlotte Smith, whose son, one-year-old Jonathan, came to THC
after suffering cardiac arrest in another day care center. His heart had been
affected when the tracheotomy tube in his throat became dislodged and he was
unable to breathe.
Children with health problems often exhaust insurance benefits in the first
year of life. Parents must sometimes mortgage their home, take a second job or
face bankruptcy to meet the exorbitant costs for children with special health
problems.
Mrs. Smith and her husband, both fully employed, were told by their Health
Maintenance Organization that Jonathan should be able to receive care from any
custodial caregiver.
When their son's medical emergency proved that was not the case, the Smiths
brought Jonathan to THC. Like most youngsters at the center, his is on
scholarship because the insurance company refuses compensation. His parents pay
daycare fees on a sliding scale basis. Jonathan still needs careful attention,
but he is thriving at THC.
"A child's condition doesn't go away," just because "an
insurance company decides they're not going to take them anymore," said
Ms. Austin, who worked in Grady Hospital's neonatal intensive care unit before
heading up THC.
The center, open from 7 a.m. until 7 p.m. Monday through Friday, now cares
for 11 children. The maximum number it can accommodate is 15. Since it opened,
25 children have come through the facility.
"They all come in with a discharge plan," Ms. Austin explained.
Some of the children are in care for a short while, others for extended
periods. One set of twins who were four pounds at birth stayed at THC until
they reached 15 pounds and could be admitted to regular daycare.
"It depends on the medical problem," she said. But always,
"the purpose is that they aren't treated like sick children." They
engage in normal activity that leads to socialization. "We teach them to
give a high-five, shake hands and give each other kisses," she laughed.
A Syracuse, N.Y., native and Boston College graduate, Ms. Austin is a
Catholic who trained at St. Joseph's Hospital in her hometown. She is
enthusiastic about CHD support.
"It was the first grant we secured," she said, pleased
that "somebody recognized we are a good cause."
Three-quarters of monies raised through the annual CHD pre-Thanksgiving
collection goes towards national projects. The remainder stays in local
dioceses to fund projects like THC.
The center has a $300,000 seed loan from Pediatric Services of America,
Inc., a debt that hangs heavy over her head, said Ms. Austin, who works a 10
hour shift, from 9 a.m. until 7 p.m. five days a week. Other staff members
include two L.P.N.'s and three nursing assistants. THC subcontracts speech,
occupational and physical therapy for its young clients and is currently
working up a volunteer pool and an "adoption plan through which groups and
individuals can offset costs for one child's care.
Despite the long hours, Ms. Austin says her job has "a lot of
rewards."
"These are my kids," she said. "They are sick kids,
but everyone here works so hard to keep them healthy, they don't seem
sick."
Contented murmurs from her little charges affirm Ms. Austin's observation.
"They are very happy," she said of the children.
"There's rarely a time that you hear anybody crying. They know each other
very well and are very affectionate and loving."
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