| By Rita McInerney
Phil Carter returned to his Honduran island home Jan. 12 after a
life-changing stay in Atlanta.
Many people connected to St. Josephs Hospital contributed to his new
life: two surgeons, nurses, technicians, Hispanic Services, volunteers and
administrators.
Phil, described by people in his large support group as outgoing and endowed
with a sense of humor, was born with Crouzons disease, a cranial facial
disfigurement.
When he came to the attention of Dr. Fernando Burstein, a plastic surgeon on
the staff at St. Josephs, his jaw was malpositioned and his eyes
protruded. He couldnt chew food, he was developing corneal abrasions that
could lead to blindness and he had difficulty breathing.
On Nov. 13, Dr. Burstein and Dr. Thomas Boc, an oral and maxillofacial
surgeon, giving their services at no cost, operated on Phil to correct the
disfigurements which had made him a figure to be shunned and ostracized at home
in the Bahia islands off the coast of Honduras.
During the eight-hour surgery, the co-surgeons cut all the way across the
forehead and pulled down the skin to the orbit, the bony socket of the eye. Two
incisions also were made under the eyes to give access to the lower part of the
facial skeleton, according to Doctor Burstein.
This allowed the surgeons, he said, to look at all the misshapen parts of
Phils face. Then, using special saws, the doctors cut those features and
moved them into their proper position. Then they inserted special plates and
screws to hold the realignments in place.
Dr. Burstein said the young mans face was moved forward almost one
inch and the gaps were closed with bone taken from the hip. The hip will
heal, its a good place to get bone, he commented.
Dr. Burstein, a native of Santiago, Chile, who came to the U.S. at 10, said
it was very rewarding emotionally, to perform successful surgery on
Phil especially since its rare to do so on a person so late in
life. Phil will be 29 on Feb. 7.
The plastic surgeon said he has treated about 10 people, with the rare birth
disease afflicting about one person in every 150,000. He has performed the
surgery quite frequently at Scottish Rite childrens Hospital,
usually a few months after the patients birth.
It was the first surgery on a Crouzons patient the two doctors
performed together at St. Josephs. Dr. Boc and I have cooperated on
other complex surgery, he said.
Dr. Boc, a surgeon at St. Josephs for about 11 years, said Phil
still has a little bit of discrepancy in his bite, but doesnt
consider that much of a problem, going from almost an inch to a few
millimeters.
He said the last time he saw his patient he was almost in a comical
mood. He didnt think anyone would recognize him. In his country most of
the people like him are shunned. He got a little teary-eyed.
The road to Atlanta began for Phil when his case was brought to the
attention of the Honduras Baptist Medical and Dental Mission headquartered in
Petal, Miss.
This mission sends teams of medical, dental and evangelistic volunteers to
Honduras for short stays. The mission was contacted by the Junta Nacional de
Bienestar, the social welfare department in Honduras about Phil.
The Baptist mission, begun in 1974, contacted several doctors who said the
case was too severe to undertake before contacting Dr. Jonathan Prendergrass in
Mobile, Ala. He was unable to do the surgery but asked a friend, Dr. Franklyn
Elliott, an Atlanta plastic surgeon, if he knew of anyone qualified to do the
surgery.
My partner, Dr. Elliott told the Mobile doctor.
When Dr. Burstein was approached he agreed to evaluate Phil and then
contacted St. Josephs to see if the hospital would provide free care.
This was back in June, 1990, according to Sister Josephine Patti, GNSH, vice
president in charge of mission effectiveness at the hospital.
Free care was approved, Sister Patti said, because St. Josephs
Hospital has a long history of reaching out to our underserved brothers and
sisters. We looked on the opportunity of providing Phil Carter with the complex
care he required as a way to help this young man have a better life in the
future.
Dorcas Hawkins of the Baptist mission group in Petal, said they worked with
the Honduras welfare department in getting a visa for Phil once Dr. Burstein
had agreed to take the case. A Honduran airline, Taca, took care of his flight
costs from Honduras to New Orleans and the mission paid for travel from there
to Atlanta.
Phil fully understood there was high risk involved in the surgery but said
whatever happened would be Gods will. But his departure hopes became
clouded when an official at the airport wouldnt let him board because he
lacked the papers required of medical patients traveling alone. With the friend
who had driven him to the airport, he sped off to the doctors office for
the necessary papers only to be stalled by a flat tire. Fortunately, the two
made it to the doctors office, got the papers and hurried back to find
the official had held the plane for Phil.
Phils home is on the smaller of the two islands making up the Islas de
la Bahia (Bay Islands) off the northern coast of Honduras. English is the
primary language since the islands were first colonized by Great Britain. Later
they were ceded to Honduras.
He estimates there are about 3,000 people living on the island, many of whom
fish for a livelihood. Others work on plantations where bananas and melons are
grown. Phil said he used to work at a fish processing plant owned by Americans.
He ran errands and kept the office cleaned.
The youngest of nine children, he remembers his mother telling him that he
was a natural baby and it wasnt until after he started
growing that the Crouzons disease became evident.
His eyesight began to fail when he was a small child, but his parents
thought he was imagining this. After finishing third grade he became so sickly
that he couldnt attend school and spent most of his time confined to his
bed. He couldnt chew and there was no bridge to his nose, in addition to
the failing eyesight, he said.
His mother, a school teacher, Phil said, taught him about the Bible and
about Jesus. She also taught me manners and how to get along with
people.
Along with medical and hospital personnel, numerous individuals and about
eight St. Vincent de Paul parish conferences were part of the support group
that offered Phil Carter tender, loving care.
The hospitals Hispanic Services office, directed by Sister Barbara
Harrington, GNSH, coordinated his Atlanta stay. The SVDP units, she said,
provided funds to pay his minimal board with a Colombian woman. The
woman and her family, Sister Harrington said, have been very
generous, going beyond the arrangement in providing hospitality.
Other volunteers for Hispanic Services greeted him, entertained and drove
him to the hospital and doctors offices for follow-up care.
Rosemary and Larry Bechler of Holy Family parish in Marietta were his hosts
over Christmas. It wasnt any time at all, both said, before they were
touched by his gentleness, courtesy and openness to new surroundings and
situations.
He was a good guest, Mrs. Bechler said. He enjoyed her cooking, especially
the macaroni and cheese casserole she made for him.
Phil, who said he is a Seventh Day Adventist, liked the friendliness of Holy
Family parishioners when he attended Christmastime liturgies. He enjoyed the
way people greeted each other at the beginning of Mass, and the singing of the
carols.
Mr. Bechler called their guest a very brave young man, who was
receptive to new people and new experiences despite considerable pain during
his recuperation.
Phil returned home with a collection of souvenirs from Atlanta, including
Olympic 1996 shirts and caps and memories of the friends he had made in a city
he liked very much.
Both doctors said he may return to Atlanta in about six months for some
minor procedures.
Dr. Burstein estimated cost of the surgery at about $20,000. Dr. Boc, in
addition, estimated the cost of the special materials used to reconstruct
Phils face at $10,000.
Dr. Boc, a member of St. Jude parish in Sandy Springs, terms the case a
real milestone for Atlanta. He looks forward to the day when the
two surgeons can develop a cranial facial center here that will obviate
travel to other centers, in New York, Boston, and Dallas-Fort Worth, for
people in the Southeast requiring such services.
|