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By Thea Jarvis
Susan Sendelbach joined St. Joseph Hospital
pastoral care department three years ago. Formerly a campus minister at Emory
University, Georgia State and Agnes Scott, she earned a graduate degree in
theology from Catholic University and is completing a Doctor of Ministry degree
from Emory University. Mornings find Susan at the Interfaith Ministry Institute
in Marietta, a private counseling practice she co-directs with her husband,
Jim. Afternoons at St. Joe's, she is on of 10 chaplains serving some 300
patients at the northside Atlanta facility.
Ms. Sendelbach has a very special concern for
persons with AIDS.
"The issues are so intense," she explains, noting
that such ministry includes not only the patient, but family and friends as
well. It must even touch she says, other AIDS patients who follow the progress
of the disease to see how it may eventually impact on them. The social
controversy that surrounds AIDS and the terminal nature of the disease
heightens the pressure felt by her patients. While persons with AIDS comprise
only about 25 percent of her chaplaincy load, such patients require almost
three times as much care and time.
Susan met her first two AIDS patients shortly
after she came to St. Joseph's Hospital.
"I went looking for them," she says, smiling. "I
felt they probably were lonely and needed somebody to make a special effort to
meet them."
One of the men was seriously ill, and died soon
after Susan met him. The other, an accomplished musician whose ties to the
Church were close and strong, converted to Catholicism after the initial
diagnosis was made. He was in and out of the hospital several times for
treatment and care and died after receiving the sacrament of Anointing of the
Sick.
"He felt a lot of loving support" from the Church
and those around him, Susan is happy to say. "You can't judge an individual,
even if someone can find blame. You can't attack someone and not give them the
ministry and care they need."
During her evening shift, the pace is slower than
the hectic morning schedule common to most hospitals. Patients have more time
on their hands, time sometimes spent worrying or visiting with anxiety-ridden
family members. It is a time when fears and crises are faced.
"I offer patients a hopefulness based in realism,
not ignorance of the facts," Susan says of her work. "I encourage them to put
their energy into positive actions," reconciling with family and friends when
necessary, setting their lives in order, even planning funerals. She tries to
discover where patients are spiritually and help them build a closer
relationship to God.
In ministering to AIDS patients, Ms. Sendelbach
has consistently encountered open, loving people of depth and truth. "They've
helped open my mind and challenged me to be more open."
One of her patients, the longest to live with
Kaposi's sarcoma, a fast-spreading form of a normally mild skin cancer which
appears in many AIDS victims, wanted "a crash course in God." He was burdened
with a fearful image of God and was deeply "concerned about being forgiven,"
Susan remembers. She spent many hours dispelling his fears and reassuring him
of forgiveness and hope. As he was dying, struggling for breath, he suddenly
looked up and, with a radiant smile on his face, exclaimed, "Susan said there
would be a light." He died with his hands outstretched, as if reaching for the
light.
Susan finds "the emotional and spiritual state of
a patient does help them." Enjoying life, traveling, spending quality time with
people they are about is the difference between "experiencing the time they
have versus waiting for death."
"It's important to know that most people do live a
couple of years -- up to four years -- and research is still going on," she
points out. Although it is considered a terminal illness, Ms. Sendelbach holds
out hope that "something new will be found, miracles will happen."
She is also convinced that, in ministry to people
with AIDS, demonstrative care is essential.
"I get more affectionate with (AIDS patients) than
with others because they're so isolated from physical touch. They seem to want
it."
Hugging a patient with AIDS is a lot more
acceptable than it used to be, Susan explains. When she first began dealing
with AIDS patients, there was "less education and a great deal of ignorance
about taking precautions, being overcautious" about casual contact. While
prejudice was a factor, even in health care of persons with AIDS several years
ago, "people have come to know and love and trust (AIDS patients) as
individuals. There's a lot more openness."
"AIDS is not a contagious disease. It's
transmittable through very specific activity," Susan emphasizes. If an AIDS
victim bled directly into another persons' open wound, if they shared
intravenous drug needles or had intimate sexual contact, then there would be
legitimate ground for concern.
The father of one AIDS patient she knew flew in
from New York despite his conviction that he would contract the AIDS virus from
his son just by being near him. There had been a major family rift over the
patient's homosexual lifestyle and the significance of the father's action was
not lost on his son. Education of the father was added to the reconciliation
process and a period of peace and healing lasted until the patient's death.
"When a person is ill," Susan reiterates, "his
sexual orientation should be a concern. There is a prejudicial grouping of
gays" that must be avoided. "We must see people as individuals, not groups."
She explains that, although AIDS usually targets
the homosexual community, she has personally cared for two heterosexual
intravenous drug users and a woman who contracted AIDS through her husband, an
intravenous drug user.
"The Church has the opportunity to minister to
saints, sinners, gifted and not gifted. We don't minister to people who are
already living the perfect life," she has found.
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