|
By Thea Jarvis
Collen Datelle is a Christmas child.
With soft auburn curls framing an angel face, playful hazel eyes
and a splash of freckles across her little nose, she might be a present
youd find under your tree on Christmas morning.
Colleen will be three years old this December 26. She proudly
shows a visitor just how many fingers this means on her small pink hand. With
grace, Colleen pours tea from her play set on the kitchen table and
introduces Miss Lucy Daisy, a fiery redheaded Cabbage Patch persona given to
her at Henrietta Egleston Childrens Hospital just two Christmases ago.
Lucy is not a pretty as Colleen, but does have a certain appeal that has won
her heart.
Christmas is a special time for Colleen and her parents, Hank and
Kathy Datelle of Immaculate Heart of Mary Church in Atlanta. Their family,
including 16-year-old Marc and 14-year-old Lisa, is deeply aware of the magic
and mystery of the Christmas feast. Their home is filled with the sights and
sounds of the season a tall evergreen in the living room, stockings on
the hearth, a welcoming wreath on the front door, and music in the air.
But the surest sign of Christmas in the Datelle household is young
Colleen, their Christmas child, for she is a cherished gift.
Just four days before Christmas in 1982, Colleen Datelle was
admitted to Egleston Hospital in Atlanta. She was, in the words of her
pediatrician, C. Robert Metzger, M.D., acutely and totally blind.
Colleen had just spent 17 days at Egleston over the Thanksgiving
holidays. An inner ear infection had developed into pneumoccocal meningitis, a
very severe form of the illness, which, Dr. Metzger observed is easily a
killer, often resulting in permanent brain damage and neurological
handicaps.
Colleens meningitis, with its resulting seizures, high
fever, loss of head control and constant pain, was eventually brought under
control with antibiotics an intensive care from a team of physicians and
nurses. Hank and Kathy remember those 17 days as a time of fear and faith, of
terrible despair and strong hope.
The thought of my baby dying was incredible, Kathy
says, recalling the friends and strangers alike who offered the family
consolation, prayers and physical help.
A miniature flower arrangement sits on the Datelles kitchen
windowsill as a reminder of the ordeal, the gift of an Hispanic mother and her
eight-year-old daughter. The child was a victim of meningitis herself, and she
and her mother came to the hospital to share the story of a successful outcome.
The daughter translated as her mother related their own encounter
with meningitis, but the message attached to the flowers they had brought
needed no translation. Everywhere, miracles tell us He is real, it
said clearly.
The miracle seemed real enough when Colleen was discharged from
Egleston. She was alert, with good head control, her ears appeared clear and
her temperature was down. When she arrived home December 8, the feast of the
Immaculate Conception, the tree was up and Colleen immediately began grabbing
at the ornaments.
But just six days after discharge, her parents noticed that she
was missing objects when she reached for them. By December 19, Colleen
wasnt reacting to people unless they spoke to her.
Hank said he went into her room and she was lying in her
crib with her eyes open, Kathy remembers. When Hank spoke to her
she was very startled. She obviously didnt even see him standing
there.
Kathys own acid test was holding Colleen up to the bright
sunlight streaming through the kitchen windows. Colleen usually reacted
strongly to the sun, rubbing her eyes and fussing because she was sensitive to
the light.
This time, however, She didnt even flinch, says
Kathy.
By December 20, Colleen had been readmitted to Egleston with total
vision loss, what Dr. Metzger calls "cortical blindness." Her eyes
themselves were in no way damaged, but the meningitis, he judged, had caused
hydrocephalus, a buildup of fluid in the brain. The pressure of the fluid was
impairing Colleens visual function.
Quite honestly, Metzger remarks now, cortical
blindness is a rare complication of meningitis. I never saw it in 20 years of
practice. We had no great hope that the child would recover.
The Datelles were distraught. Just when they thought
Colleens medical problems were behind them, the vision loss loomed as a
new nemesis that threatened their baby.
We were suddenly very anxious. It wasnt a problem that
could reverse itself, Kathy explains. Colleen had severe
hydrocephalus. Immediate surgery was mandatory.
When Colleen was taken into surgery for a shunting procedure that
would control the level of fluid in her brain, Kathy cried in the hospital room
with Hank and her stepdaughter Lisa.
She wrote in a journal she was keeping, The Lord is my
Shepherd. I shall not want. Colleen is the Shepherds little lamb.
Hell take care of her.
Following the operation, there was immediate relief of the
pressure on Colleens brain. Hope that her vision could return over a
period of time surfaced, although nothing was guaranteed.
Ophthalmologist Mac McDowell, one of the many physicians,
neurologists, neurosurgeons and infectious disease specialists who had entered
Colleen' life since November, gave the Datelles one of their greatest
boosts during this time, Kathy says. Calling in at the hospital to check on
Colleens progress, he reassured them over the phone, What a better
time (for this to happen) than Christmas. Its the time for
miracles.
Indeed, Christmas was getting closer, though the Datelles had lost
a sense of time and place. By the time Colleen had recovered sufficiently from
her operation to return home, it was the later afternoon of December 23. The
neurologist had cautioned the family that it generally would take as long for
the swelling from the fluid in her brain to subside as it did to grow. He
reasoned that if Colleens swelling began with the onset of meningitis
they might begin to notice vision return in four to five weeks. For now Colleen
was still not reacting visually to brightness or those around her.
At home, the whole family was mobilized around Colleen. Little
else seemed to matter. When Kathy got a call from a friend inviting her to a
Christmas even candlelight service at a Methodist church in Decatur, she
consented without thought or emotion.
It was the first time in my life I ever celebrated Christmas
in a church other than Catholic, she says with lingering surprise. She
left Hank with Colleen and the older children and set out with her friend
Christmas eve night.
Though moving as if in a daze, Kathy was able to hear the sermon
preached by the wife of the Methodist minister. It was the story of a young
girl with a crippled back who lived in Bethlehem. The girl noticed that when a
strong light shining in her window fell on her twisted back, she immediately
felt better. The child eventually followed the light to a stable nearby,
finding within the source of its warmth and brightness. A child in the stable
haybox touched her and her crippled back was healed.
The message, for Kathy, was bold and powerful. Colleen, too, was a
handicapped child, open to love and healing. Her spirits were beginning to
lift. As each person in turn lit each others candle, the darkened church
sprang to life and Kathy was moved to tears. Leaving the service her friend
whispered, I think Colleen is going to see.
Everyone was making me really believe in the miracle of the
day, the miracle of Christmas, Kathy says now, looking back on that time
as renewal of her own faith.
When she returned home, Kathy and Hank ate dinner quietly and
turned on Christmas music. Around 10:30 p.m., Hank went upstairs to check on
his little Colleen and rushed down with news that the baby had reached out and
touched his nose.
Kathy raced upstairs with Hank on her heels. They decided that
Kathy would walk quietly to the crib and Hank would turn on the light to see if
she reacted.
And she did! Kathy says with an enthusiasm that still
surfaces when she speaks of that Christmas Eve. She was extremely
restless so I picked her up and tried to comfort her in the rocking chair but
she didnt want to sit still. She was stimulated by something and
wasnt about to be quiet.
Kathy continued to hold Colleen on her knee while Hank sat on the
floor next to her. She seemed to be looking at him, but her parents still
couldnt be sure that she was actually seeing.
Finally, Hank said, I wont believe she can see
unless she reaches for me, Kathy remembers. He said it and
she did it! We cried like babies.
The Datelles Christmas miracle, as Kathy calls
it, remains fixed in their minds and hearts. Today, Colleen is a bright and
cheerful preschooler whose outward appearance belies her medical history.
Her vision has returned intact. The only reminders of
Colleens brush with meningitis are a yearly checkup to insure the proper
operation of her shunting device and daily medication to control seizures. She
is the Datelle angel, a focus for playfulness in the family, a kitchen sunbeam
who lights up the house.
Dr. Metzger, Colleens pediatrician, says of her recover,
It was like a miracle, the way it all happened, the timing of it
all. His own expectations were that, if anything, Colleens
returning vision would be a matter of slow improvement over some months.
I had held out very little hope, he admits, adding,
She came back so dramatically, it was great to see. Colleen, he
feels, is like a little gift that God gave us.
At this time of year, the memory of Colleens return to
health and wholeness is especially keen in the Datelle household. Each time
Kathy hears the words of O Holy Night, she is reminded that, for
her, there was a presence of angels in Colleens room that Christmas Eve.
Fall on your knees, O hear the angel voices, is the lyric that
gives her pause for wonder.
Thats what we did, Kathy Datelle says with a
smile. |